NB: 'UNCOMPLETED PROJECT' - Registrar project - will present preliminary data.
Background
Rheumatoid arthritis is a chronic condition with a high burden of disease. Many interventions have been trialled in the past. Despite the widespread acceptance of the importance of person-centred care in rheumatoid arthritis, it is unclear how many of these studied interventions have put patients at the centre of the healthcare system and whether they have been consumer-led or meaningfully co-designed with consumers. To address this gap, we are conducting a consumer-led systematic review of person-centred care intervention RCTs in patients with rheumatoid arthritis.
Aim
To identify and critically evaluate existing person-centred care interventions for people with rheumatoid arthritis.
Methods
RCTs or quasi-RCTs with person-centred care interventions targeted at adult patients with rheumatoid arthritis and/or their caregivers or healthcare providers, in comparison with usual care or active control, will be included. Major outcomes (Person-Centred Outcomes) include shared decision making, communication and caring. Minor outcomes (Clinical Response Outcomes) include the OMERACT Core outcomes for RA. Person-centred outcomes were developed following a semi-structured interview with 8 consumers living with rheumatic disease. The definition of a person-centred care intervention was based on an adaptation from a framework model by Morgan & Yoder1 and also in discussion with a consumer-focus group of patients living with rheumatic disease. Three reviewers will screen and extract studies, of which one of the reviewers is a consumer. There are no language restrictions. Non-primary studies, qualitative studies, review articles and person-centred care interventions targeting conditions other than RA will be excluded. Quality of evidence will be assessed via the GRADE approach. Risk of bias will be assessed using standardised assessment tools. A meta-analysis will be conducted if there is suitable homogeneity in outcomes. If there is significant heterogeneity, a summary of findings table will be presented.
Results
From the initial search of 10,286 studies, X were included and involved a total of X patients. Results to TBC